Friday, May 27, 2011

Got her Tracheostomy

Leah got back from the OR where they did her tracheostomy. While they were in there they also did a Superglottoplasty for her laryngomalacia. So, that should help reduce the sound she makes and make her airway wider until she develops it better.
She is looking really good, they have her on some morphine for pain medication but she will only be getting that for about 24 hours every once in a while. So, it's not like she's sedated around the clock. They are also giving her some Precedex which is a sedative for when she gets too agitated and to help her sleep if she can't on her own.
She seems much better now too, now that the tube doesn't seem to be bothering her as much. The doctors also want to start weaning her off the ventilator in a couple of days so that she can just breath through her trach. It will take about a week for her to get weaned off of all the medications they have her on, before they can start on the medication (Carbidopa/Leva-Dopa) they are planning on giving her for the movement disorder. The is
sue right now is also getting
the right dosage and preparing the medicine appropriately for an infant to take.
For now we are happy that she seems more comfortable and that she at least looks happier
Thanks to everyone who is supporting us with their thoughts and prayers
Here are some pictures of the princess today after her surgery, enjoy...

This is right before she was reintubated, from last Thursday:
Here we are after the naming ceremony on Monday:
This is from today after she got her trach:

1 comment:

  1. God bless you, your family and your daughter... she is so daughter had the same surgery when she was 1 month and so far she has been doing great...What hospital are you guys at?