So, we have some news about Leah. The ophthalmologists came by today to let us know that they will be doing the operation on her right eye for cataracts this Thursday. They will plan to do the second eye next week. Since they are taking the lens from her eye and cannot insert another one, she will have to wear contacts. Although, because of her eye movements, if the contacts don't stay in, she will have to wear very thick glasses so that her vision can develop normally. They told us that it is a very simple procedure, they will suction the cataract out with some instruments. She will need to have a lot of eye exams and care for the rest of her life, because there is a risk for glaucoma to develop later in life.
They discontinued the Haldol today and there was a significant difference in her movements today. She still had her "dance" as we call it, but did not have the extreme dystonic movements that we saw over the weekend while she was getting Haldol. Actually, dystonic movement is one of the known side effects of that drug, so since it didn't help, it made things much worse for her. We are also planning on a having a sit down family meeting with the Neuro team to see what the next steps are for her as well as to get a list of all the tests that they've already done and what they've ruled out. That should be happening some time this week.
KTLA 5, our local channel stopped by today to interview us about Leah and all the support she's been getting from the Star Wars community on Facebook. I guess someone called them yesterday and they were going to stop by yesterday, but it was too late. Then a friend of ours, David Silva said he also called them to tell them about us. It will be airing tonight at 10 pm on channel 5 in LA. Hopefully people will see and be able to help, maybe some doctor will be able to learn more about her and her symptoms and help.
I'm so proud of my little baby, she's so strong and brave. I'm amazed that she continues to fight everyday and is trying to do all the things that babies her age do (holding her haed up, sucking her fingers, smiling) It's a little harder for her, but she tries very hard. She'll always have Zev and I, and her family all over the world now to count on.
Thanks to everyone for your well wishes and donations