Thursday, March 8, 2012

March Madness...

Hi All,
It's Frani
Things have settled down a bit and we are finally able to give an update today. Some of you may have seen the posts on Facebook about Leah going to the ER on Tuesday.
We took Leah to the ER at around 8 am, because she was having some seizures. We were able to stop them pretty quickly by administering some clonopin. She fell asleep on the way to the ER, thankfully. We got her in and she got the usual: blood tests, trach secretion culture, urine analysis and chest X-rays.
After a couple hours, we heard that her WBC (white blood cell) count was elevated, which is a sign of infection. The urinalysis came back negative, so there is no UTI that we're aware of. The chest X-ray, however came back showing some early signs of pneumonia, or fluid in the lungs. Luckily, it's not too sever, and is most likely caused by an infection and the fact that she isn't very active due to so much sedation. When the vent pushes moisture into her trach, fluid collects in the lungs. Normally, we are pretty active and can cough anything in our lungs out, but since she is pretty much laying down most of the time and not moving as much, the fluid collects in her lungs; and though she sometimes clears it by coughing it out, but when there's an infection, it gets thicker and harder to do.
Anyway, they told us she would be admitted to the PICU at around noon, but we didn't actually go upstairs until 6 pm. Not too bad, considering were so busy yesterday, but still a very long time waiting. After she was admitted, I took off to the house to pick up an overnight bag for Zev and have dinner. We decided that since I needed to go to work the next day, Zev would stay overnight with Leah and I would come in early the next morning to hang out with her until I went to work. I start work at 10-10:30ish, so I woke up early the next day and headed over with lunch for Zev and kisses for my baby.
On top of everything else, for about a week, she's been biting on her tongue as a reflex and since she has 2 bottom teeth, she has a big sore on the bottom of her tongue that she keeps scraping, so we've been trying to get her to bit the pacifier or our fingers (ouch!), since it will never heal if she keeps going. So, she was dealing with a lot of pain from that as well. Luckily, Zev insisted on having someone from Dentistry come in to see her in the PICU yesterday and they are working on making a mouth guard for her to wear and not bit herself. Hopefully it will help. She had a pretty rough night last night as well, she needed to get morphine twice to help her sleep from the pain of the mouth and the pain she was probably in from being sick.Zev was really upset this morning after he woke up, he found that she had bitten her tongue again and was bleeding from the mouth and no one had noticed or checked on her.
Zev is with her now in the hospital while I'm at work, writing this on my lunch break. I meant to post last night, but was busy with Leah, Zev and Nic and by the time I got home I was way too tired.
Anyway, I'll try to keep posting while she's in the PICU, but keep praying for her and us, we really need it